January 23, 2019 Newborn Screening Advisory Committee Meeting
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1. Welcome and Introductions (Part 1 of 2)
1. Welcome and Introductions (Part 1 of 2)
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2. Committee Business Logistics
2. Committee Business Logistics
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1. Welcome and Introductions (Part 2 of 2)
1. Welcome and Introductions (Part 2 of 2)
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3. Action: Review and approval of meeting minutes for October 19, 2018
3. Action: Review and approval of meeting minutes for October 19, 2018
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4. Sickle Cell Advisory Committee 2018 Annual Report Recommendations
4. Sickle Cell Advisory Committee 2018 Annual Report Recommendations
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Items 5 & 6 » - 5. Legislative updates 6. NBS Medicaid Funding
Items 5 & 6 »
5. Legislative updates 6. NBS Medicaid Funding
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7. Status of Parental Refusal/Consent Form
7. Status of Parental Refusal/Consent Form
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8. Break
8. Break
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9. WORKING LUNCH: NBS 2016 Consultants Survey – Telephone Consultations
9. WORKING LUNCH: NBS 2016 Consultants Survey – Telephone Consultations
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10. Break
10. Break
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11. X-ALD Screening Implementation
11. X-ALD Screening Implementation
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12. Algorithm for linking 1st & 2nd Screens
12. Algorithm for linking 1st & 2nd Screens
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13. Rider 37 Subcommittee Reporting
13. Rider 37 Subcommittee Reporting
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15. Newborn Hearing Screening in Neonatal Intensive Care Unit (NICU) Subcommittee Reporting
15. Newborn Hearing Screening in Neonatal Intensive Care Unit (NICU) Subcommittee Reporting
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14. Critical Congenital Heart Disease (CCHD) Subcommittee Reporting
14. Critical Congenital Heart Disease (CCHD) Subcommittee Reporting
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16. Screened conditions status updates
16. Screened conditions status updates
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17. Future condition implementation updates
17. Future condition implementation updates
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19. Future agenda items/Next meeting date/Adjournment
19. Future agenda items/Next meeting date/Adjournment
