April 29, 2019 Newborn Screening Advisory Committee Meeting
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1. Welcome and Introductions
1. Welcome and Introductions
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2. Committee Business Logistics
2. Committee Business Logistics
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3. Action: Review and approval of meeting minutes for January 23, 2019
3. Action: Review and approval of meeting minutes for January 23, 2019
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4. Legislative updates
4. Legislative updates
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5. Estimated time and cost for full implementation of RUSP conditions
5. Estimated time and cost for full implementation of RUSP conditions
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6. Rider 37 » - a. Subcommittee reporting b. Action: Review and approval of letter response to Rider 37 study
6. Rider 37 »
a. Subcommittee reportingb. Action: Review and approval of letter response to Rider 37 study
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8. Working Lunch: Sickle Cell Subcommittee Reporting
8. Working Lunch: Sickle Cell Subcommittee Reporting
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7. Break
7. Break
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9. Working Lunch: DSHS Laboratory automated matching
9. Working Lunch: DSHS Laboratory automated matching
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10. Break
10. Break
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11. Newborn Hearing Screening in Neonatal Intensive Care Unit (NICU) » - a. Subcommittee Reporting b. Pilot study
11. Newborn Hearing Screening in Neonatal Intensive Care Unit (NICU) »
a. Subcommittee Reportingb. Pilot study
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12. Critical Congenital Heart Disease (CCHD) Subcommittee Reporting » - a. Subcommittee Reporting b. Pilot study
12. Critical Congenital Heart Disease (CCHD) Subcommittee Reporting »
a. Subcommittee Reportingb. Pilot study
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13. NBS Consultants Fees
13. NBS Consultants Fees
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14. Status of Parental Refusal/Consent Form
14. Status of Parental Refusal/Consent Form
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15. Screened conditions status updates – Clinical Care Coordination follow up process
15. Screened conditions status updates – Clinical Care Coordination follow up process
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16. Future condition implementation updates
16. Future condition implementation updates
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17. Public Comment
17. Public Comment
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18. Future agenda items/Next meeting date/Adjournment
18. Future agenda items/Next meeting date/Adjournment
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