January 23, 2019 - 10:30am

Department of State Health Services, Robert D. Moreton Building, Board Room M-100
1100 West 49th St.
Austin Texas, 78756

Agenda

Webcasting Available

1. Welcome and Introductions
2. Committee Business Logistics
3. Action: Review and approval of meeting minutes for October 19, 2018
4. Sickle Cell Advisory Committee 2018 Annual Report Recommendations
5. Legislative updates
6. NBS Medicaid Funding
7. Status of Parental Refusal/Consent Form
8. Break
9. WORKING LUNCH: NBS 2016 Consultants Survey – Telephone Consultations
10. Break
11. X-ALD Screening Implementation
12. Algorithm for linking 1st & 2nd Screens
13. Rider 37 Subcommittee Reporting
14. Critical Congenital Heart Disease (CCHD) Subcommittee Reporting
15. Newborn Hearing Screening in Neonatal Intensive Care Unit (NICU) Subcommittee Reporting
16. Screened conditions status updates
17. Future condition implementation updates
18. Public Comment
19. Future agenda items/Next meeting date/Adjournment

The committee may take action on any agenda item.

Contact: Questions regarding agenda items, content, or meeting arrangements should be directed to Aimee Millangue, Newborn Screening Unit, Department of State Health Services, 512 776 3386, Aimee.Millangue@dshs.texas.gov.
This meeting is open to the public. No reservations are required, and there is no cost to attend this meeting. Members of the public who wish to speak during the Public Comment period must be physically present.

People with disabilities who plan to attend this meeting and require auxiliary aids or services should contact Anne Mosher, Department of State Health Services, 512 776 2780, Anne.Mosher@dshs.texas.gov at least 72 hours prior to the meeting so that appropriate arrangements can be made.

This meeting will be webcast. To access the webcast, go to https://hhs.texas.gov/about-hhs/communications-events/live-archived-meetings the day and time of the meeting. Please e mail Webcasting@hhsc.state.tx.us if you have any problems with the webcasting function.