January 31, 2020 - 10:00am

Department of State Health Services, Robert D. Moreton Building, Room M-100
1100 West 49th St.
Austin Texas, 78756

Agenda

Webcasting Available

This meeting will be webcast. To access the webcast, go to https://hhs.texas.gov/about-hhs/communications-events/live-archived-meetings the day and time of the meeting. Please email Webcasting@hhsc.state.tx.us if you have any problems with the webcasting function.

  1. Welcome and Introductions
  2. Committee Business Logistics
  3. Action: Review and approval of meeting minutes for October 11, 2019
  4. Chair appreciation
  5. X-linked Adrenoleukodystrophy (X-ALD) testing update
  6. Screened conditions status updates
  7. Spinal Muscular Atrophy (SMA) screening implementation update
  8. Future condition implementation updates
  9. Proposed Newborn Hearing Screening Rules
  10. Working Lunch: Laboratory testing/newborn screening kit fee increase impacts
  11. Working Lunch: Interoperability for Newborn Screening Programs
  12. Sickle Cell Subcommittee Reporting
  13. Newborn Hearing Screening in Neonatal Intensive Care Unit (NICU) Subcommittee Reporting
  14. Critical Congenital Heart Disease (CCHD) Subcommittee Reporting
  15. NBS Consultant Fees Subcommittee Reporting
  16. Public Comment
  17. Future agenda items/Next meeting date/Adjournment

The committee may take action on any agenda item.

Contact: Questions regarding agenda items, content, or meeting arrangements should be directed to Aimee Millangue, Newborn Screening Unit, Department of State Health Services, 512‑776‑3386, Aimee.Millangue@dshs.texas.gov.

This meeting is open to the public. No reservations are required, and there is no cost to attend this meeting. Members of the public who wish to speak during the Public Comment period must be physically present.

People with disabilities who plan to attend this meeting and require auxiliary aids or services should contact Aimee Millangue, Department of State Health Services, at 512‑776‑3386 or Aimee.Millangue@dshs.texas.gov at least 72 hours prior to the meeting so that appropriate arrangements can be made.