October 2, 2020 - 12:00pm

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Agenda

Location:  Due to the COVID-19 pandemic, this meeting will be conducted online virtually using Microsoft Teams only. There is not a physical location for this meeting. Join the meeting here.

Attendees who would like to provide public comment should see the Public Comment section below.

1. Welcome and Introductions
2. Committee Business Logistics
3. Review and approval of meeting minutes for July 30, 2020
4. Texas Administrative Code Rulemaking Process
5. Spinal Muscular Atrophy (SMA) screening implementation update
6. Future condition implementation updates
7. Newborn Screening Fee
8. Screened conditions status updates
9. X-linked Adrenoleukodystrophy (X-ALD) update
10. COVID-19 Newborn Screening Protocols
11. Critical Congenital Heart Disease (CCHD) Subcommittee Reporting
12. Newborn Hearing Screening in Neonatal Intensive Care Unit (NICU) Subcommittee Reporting
13. Sickle Cell Subcommittee Reporting
14. Health Information Technology Subcommittee Reporting
15. Review of Bylaws
16. Public Comment
17. Future agenda items/Next meeting date/Adjournment

Public Comment: The Department of State Health Services (DSHS) welcomes public comments pertaining to topics related to newborn screening. Members of the public who would to provide public comment are asked to complete a Public Comment Form at: http://texashhsmeetings.org/NBSAC_PCReg_Oct2020. Members of the public are encouraged to participate in this process by providing written public comment to DSHS by emailing Aimee Millangue at Aimee.Millangue@dshs.texas.gov no later than 5:00 p.m. Tuesday, September 29, 2020.  Please include your name and the organization you are representing, or if you are speaking as a private citizen. Written comments are limited to three minutes and will be read during the meeting for consideration by the NBSAC.

If you would like to register to provide oral comments, please mark the correct box on the registration form.  Instructions for providing oral comment will be emailed to you with the information about joining the meeting.  Registration must be completed no later than 5:00 p.m. Tuesday, September 29, 2020.  Members of the public may also use the Microsoft Teams Live Event Q&A section to submit a request to provide public comment.  The request must contain your name and the organization you are representing, or if you are speaking as a private citizen as well as your direct phone number.

Public comment is limited to three minutes.  Speakers must state their name, affiliation, and whom they are speaking on behalf of. Public members who are using handouts are asked to provide an electronic copy in accessible pdf format that will be distributed by DSHS staff to Council members, State staff and for public distribution. Handouts are limited to two pages (paper size: 8.5” by 11”, one side only).  Handouts must be emailed to DSHS staff immediately after registering and include the name of the person who will be commenting.

Contact:  Questions regarding agenda items, content, or meeting arrangements should be directed to Aimee Millangue, Newborn Screening Unit, Department of State Health Services (DSHS), Aimee.Millangue@dshs.texas.gov, 512-776-3386.

This meeting is open to the public. No reservations are required, and there is no cost to attend this meeting.

People with disabilities who wish to attend the meeting and require assistive technology or services should contact Aimee Millangue, at Aimee.Millangue@dshs.texas.gov, or 512-776-3386 at least 72 hours prior to the meeting so that appropriate arrangements can be made.