April 16, 2021 - 12:00pm

Agenda

Location: Due to the COVID-19 pandemic, this meeting will be conducted online virtually using Microsoft Teams only. There is not a physical location for this meeting.

Closed captioning for this meeting is available. Viewers are asked to highlight the closed captioning symbol "cc" on the bottom of their viewing screen to enable this function.

Attendees who would like to provide public comment should see the Public Comment section below.

Welcome and introductions
Committee business logistics
Review and approval of meeting minutes for January 22, 2021
Spinal Muscular Atrophy screening implementation update
Future condition implementation updates
Screened conditions status updates
Laboratory testing cost-estimate
Hypothyroidism screening update
Overview of subspecialist follow up for time critical conditions
Newborn Hearing Screening Consent Form
Legislative update
Critical Congenital Heart Disease
Newborn hearing screening in the Neonatal Intensive Care Unit
Health information technology
Sickle Cell Subcommittee Reporting
Public comment
Future agenda items/next meeting date/adjournment

Public Comment: The Department of State Health Services (DSHS) welcomes public comments pertaining to topics related to newborn screening. Members of the public who would like to provide written or oral public comment are asked to complete a Public Comment form here.

Members of the public who would like to provide written public comment to DSHS may email the comments to Aimee Millangue at Aimee.Millangue@dshs.texas.gov no later than 5:00 p.m., Tuesday, April 13, 2021. Please include your name and the organization you are representing or that you are speaking as a private citizen. Staff will not read written comments aloud during the meeting, but comments will be forwarded to State staff and committee members for their consideration. Comments should not include confidential information or protected health information.

If you would like to register to provide oral comments, please mark the correct box on the registration form. Instructions for providing oral comment will be emailed to you. Registration should be completed no later than 5:00 p.m., Tuesday, April 13, 2021. Members of the public may also use the Microsoft Teams Live Event Q&A section during the meeting to submit a request to provide public comment. The request must contain your name and either the organization you are representing or that you are speaking as a private citizen as well as your direct phone number. Do not include confidential information or protected health information in comments.

Public comment is limited to three minutes. Each speaker must state their name and either the organization they are representing or that they are speaking as a private citizen. Public members who are using handouts are asked to provide an electronic copy in accessible PDF format. Handouts are limited to two pages (paper size: 8.5” by 11”, one side only). Handouts must be emailed to DSHS staff immediately after registering and include the name of the person who will be commenting. Do not include confidential information or protected health information in comments. Staff will not read written comments aloud during the meeting, but comments will be provided to Committee members and State staff. It is not permissible for public speakers to interject or ask questions to committee members during the rest of the meeting.

Contact: Questions regarding agenda items, content, or meeting arrangements should be directed to Aimee Millangue, Newborn Screening Unit, DSHS, Aimee.Millangue@dshs.texas.gov, 512-776-3386.

This meeting is open to the public. No reservations are required, and there is no cost to attend this meeting.

People with disabilities who wish to attend the meeting and require assistive technology or services should contact Aimee Millangue, at Aimee.Millangue@dshs.texas.gov, or 512-776-3386 at least 72 hours prior to the meeting so that appropriate arrangements can be made.